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Machen Update 9/7 (just written late)

Oops. Forgot this. Saw Machen’s specialist on Wednesday–good visit all around. Got some concrete advice on his diet, which isn’t nearly as restricted as we thought it was from the vague statements he’d...

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Overdue Update 1 (of 3): Paired Exchange

Let the record show, I’ve started each entry in this series of posts a number of times (at least 4 each) over the last months. Let he record also show, I’m easily distracted and pretty lame, because I...

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Some words of thanks…

Been thinking a lot today about everyone who has helped us get to this point — especially this last week, and figured I’d publicly thank a bunch of those people. I know I’ve left off too many. But I...

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A Dream Drive for My Kid

Last Friday, I described the unexpected delay in our return home. In between the time when the nephrologist and radiologist had found something and the time when they decided how much of a thing it was...

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A Wish Fulfilled

I haven’t talked about this yet for some reason, but last summer, I’m driving home from work and I get a call from a number that looked a lot like the number of the Transplant Nurses, so I answer it...

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